Most children are diagnosed by a pediatric or neuro-ophthalmologist, but they’re often referred by specialists such as pediatric neurologists or pediatricians. While neuro-ophthalmologists, pediatric and adult ophthalmologists, and optometrists can all diagnose CVI, it isn’t as easy as booking that checkup and hoping for them to understand. Ask the right question at eye appointments. If you’re worried about your child’s vision, ask the provider directly: “Do you know about CVI?” If they don’t, that’s a sign to keep looking for someone with more experience — don’t be afraid to advocate or switch providers. If you’re struggling to get a diagnosis, ask your pediatrician or neurologist for a referral to a neuro-ophthalmologist.
The average age of diagnosis really varies, especially because CVI is often missed or misdiagnosed. For the CVI doctor directory, visit CVInow.org.
You can find more information about CVI in our full article Cerebral/Cortical Visual Impairment (CVI) 101.
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