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Parent Question

Is my child's genetic testing covered by insurance?


Published: Oct. 18, 2024

While genetic testing is proven to help in diagnosing rare conditions, families have varying experiences with insurance coverage for what can be $4,000 to $8,000 tests. There are less expensive testing options available, but keep in mind that medical-grade genetic testing through your doctor is different from a direct-to-consumer (DTC) at-home testing kit.

When talking about the outlook of getting genetic testing covered by insurance, your genetic testing covered not only for you but also as a benefit to themselves. The more insurance companies pay for genetic testing, the more established genetic testing labs will be. It's important to make sure the testing lab you are being referred to is in-network. This will do two things: 1) increase the reimbursement rate for what can potentially be very expensive tests, and 2) allow the provider, or genetic testing lab, to buy into the process of getting the claims paid.

Fore more information, see Genetic Testing for Children with Developmental Disabilities and Delays.

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