Most Common Developmental Disability Diagnoses

When your child has received a new diagnosis of a developmental disability or delay, it can be helpful to gather all the information you can about their diagnosis and the supports that are available to your family. To get you started, we’ve compiled a list of two dozen of the most common childhood disability diagnoses in the United States and organizations where you can learn more and find community support.

Angelman syndrome

• Angelman Syndrome Foundation
• Child Neurology Foundation: Angelman syndrome

Attention-deficit/hyperactivity disorder

• Attention Deficit Disorder Association (ADDA)
• ADDitude
• Brain and Behavior Research Foundation: ADHD
• Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
• LD Online: ADHD
• TotallyADD
• Undivided: ADHD 101

Autism spectrum disorder

• The Asperger/Autism Network (AANE)
• Autism Intervention Research Network on Behavioral Health (AIR-B)
• Autism Research Institute
• Autism Society of LA
• Autism Spectrum Disorder Foundation
• Los Angeles Families for Effective Autism Treatment (LA FEAT)
• The Autism Community in Action (TACA)
• Autistic Self Advocacy Network (ASAN)
• Undivided: Autism 101
• Undivided: Support Organizations for Parents of Kids with Autism

Central auditory processing disorder

• Able Kids Foundation
• American Speech-Language-Hearing Association: Central Auditory Processing

Cerebral palsy

• Cerebral Palsy Alliance Research Foundation
• Cerebral Palsy Foundation
• Cerebral Palsy Guide
• Cerebral Palsy Research Network
• International Cerebral Palsy Society
• United Cerebral Palsy

CHARGE syndrome

• The CHARGE Syndrome Foundation
• Deafblind International CHARGE Network
• NORD - CHARGE Syndrome

Childhood apraxia of speech

• Apraxia Foundation
• Apraxia Kids
• American Speech-Language-Hearing Association: Childhood Apraxia of Speech
• Child Apraxia Treatment
• PROMPT Institute

Down syndrome

• Club 21 Learning and Resource Center
• Down Syndrome Affiliates in Action
• Down Syndrome Association of LA (DSALA)
• Down Syndrome Resource Foundation
• Gigi's Playhouse
• Global Down Syndrome Foundation
• Lumind/IDSC
• National Down Syndrome Congress
• Undivided: Down Syndrome 101

Dyscalculia

• Dyscalculia.org
• LD Online: Dyscalculia
• Smart Kids With Learning Disabilities: Dyscalculia

Dyslexia

• American Dyslexia Association
• Decoding Dyslexia CA (and Los Angeles support group)
• The Dyslexia Foundation
• International Dyslexia Society
• The Yale Center for Dyslexia and Creativity
• Undivided: Dyslexia 101

Epilepsy

• Defeating Epilepsy Foundation
• Epilepsy Alliance America
• Epilepsy Foundation Los Angeles
• National Association of Epilepsy Centers
• Purple Day
• Undivided: Epilepsy 101

Expressive language disorder

• American Speech-Language-Hearing Association: Spoken Language Disorders
• Healthline: Expressive Language Disorders
• Understood.org: Expressive Language Disorders

Fragile X syndrome

• Families for Fragile X
• Fragile X Association of Southern California
• FRAXA Research Foundation
• National Fragile X Foundation
• Our Fragile X World

Hearing loss

• American Society for Deaf Children
• American Speech-Language-Hearing Association
• California Hands and Voices
• Handspeak
• Hearing Health Foundation
• Hearing Loss Association of America
• National Association of the Deaf

Landau-Kleener syndrome

• Child Neurology Foundation: Landau Kleffner Syndrome
• Epilepsy Foundation: Landau Kleffner Syndrome

Phenylketonuria

• National PKU Alliance
• National PKU News
• National Society for Phenylketonuria (NSPKU)

Prader-Willi syndrome

• Foundation for Prader Willi Research
• International Prader Willi Syndrome Organisation
• Prader Willi Foundation California
• Prader Willi Syndrome Association USA

Rett syndrome

• International Rett Syndrome Foundation
• Rett Dialogue

Sensory processing disorder

• Profectum: Sensory Processing Disorder
• Sensory Processing Disorder Resource Center
• STAR Institute
• Undivided: Sensory Processing Disorder and Sensory Diets

Spina bifida

• Lamin Keita’s Hope
• The Laurita Spina Bifida Project
• NICHD: Neural Tube Defects
• Spina Bifida Association
• Spina Bifida Resource Network

Tourette syndrome

• Child Neurology Foundation: Tourette Syndrome
• NJ Center for Tourette Syndrome
• Tourette Association of America
• Tourette Syndrome Camp USA

Vision impairment

• American Council of the Blind
• American Foundation for the Blind
• Little Bear Sees: Cortical Vision Impairment
• National Center on Deaf-Blindness
• National Family Association for Deaf-Blind
• National Federation of the Blind
• Pediatric Cortical Visual Impairment Society
• The Vision of Children Foundation

Williams syndrome

• Child Neurology Foundation: Williams Syndrome
• GARD: Williams Syndrome
• Williams Syndrome Association

For many diagnoses, including those not mentioned above, a great resource is the National Organization for Rare Disorders (NORD). For a support group inclusive of all diagnoses, check out Team Undivided for Parents, our private parents-only Facebook group.